Our Cause
Osteosarcoma is a rare but devastating form of bone cancer that primarily affects children and young adults. Its aggressive nature and complex treatment requirements make it one of the most challenging cancers to combat.
At Shane Osteosarcoma Fonds, we are dedicated to improving the lives of those affected by this disease through awareness, research and support.
What Is Osteosarcoma and what is its impact?
Osteosarcoma is the most common type of bone cancer. It develops in the bone-forming cells and typically occurs in the long bones, such as the arms and legs. The journey for patients and families is physically, emotionally and financially overwhelming.
Who's affected and what are the symptoms?
Osteosarcoma primarily strikes during periods of rapid bone growth, making children, teenagers and young adults its most common victims. Adolescents are particularly vulnerable, as their bodies undergo significant growth spurts. While the disease can occur in people of all ages, it is rare in adults over 30.
Early signs of osteosarcoma are subtle and often mistaken for everyday ailments. Persistent pain in the affected limb is one of the first indicators, commonly attributed to sports injuries or growing pains in active children and teens. Swelling may appear near the affected bone, sometimes accompanied by redness or warmth.
Treatments and survival chances
Osteosarcoma presents a grueling battle for patients and families alike. Treatments are highly aggressive, involving intensive chemotherapy, radiation and complex surgeries. While advancements have improved survival rates for localized cases, the prognosis for metastatic or relapsed osteosarcoma remains heartbreakingly low. Even for those who survive, the journey doesn’t end with remission – long-term challenges such as chronic pain, mobility difficulties and emotional trauma leave lasting impacts on their lives. This stark reality underscores the urgent need for better treatments and comprehensive support systems.
Facts and Statistics
Osteosarcoma receives significantly less funding than other cancers, leaving many questions unanswered about its causes and the best treatments.
children/adolescents annually worldwide
with localized osteosarcoma survive
with metastatic cases survive
Behind every statistic is a child, a family and a fight against impossible odds.
Advancing Osteosarcoma Research
Osteosarcoma, despite being identified over a century ago, remains one of the most under-researched cancers. Rare cancers like this often receive minimal funding, leaving crucial advancements lagging behind. Treatment options have stagnated for decades, with patients relying on outdated therapies that fail many. Furthermore, the exact causes of osteosarcoma are still unknown, complicating prevention and early detection efforts. By addressing these gaps, we can pave the way for breakthroughs that offer hope to patients and their families.
Meet Shane
Shane was a bright and courageous young boy whose strength and spirit continue to inspire us. His journey with osteosarcoma was marked by resilience and determination, even in the face of immense challenges.
A true athlete, Shane was a passionate basketball player for BC Korac and loved hitting the tennis courts at TC Wallisellen. In his free time, he could often be found playing football with his friends and his brother, sharing laughs and creating memories. But Shane wasn’t just about sports – he had a creative soul. He loved to sketch and tinker, crafting beautiful and imaginative creations that reflected his vibrant personality.
Shane’s empathy was his most remarkable quality. He always thought of others before himself, ensuring the people around him felt cared for. His selflessness and compassion left an indelible mark on everyone who knew him.
Shane’s life, though far too short, was a testament to the power of love and creativity. It is in his honor that this fund was created, striving to make a difference for children and families facing the challenges of osteosarcoma. His story fuels our mission, reminding us why we must fight for a future with hope and healing.
